I chose eBay because Iām Australian and I didnāt want to give recommendations for stores that are only here. These are the ones that genuinely help me every day.Ā
I encourage everybody to use The Mighty – basically Facebook for the chronically ill. You can tailor your feed to your diseases. I didnāt know who needed help with what so here are some pages on The Might about products chronic pain:
My face is having uncontrollable spasms. Great. It hurts really, really, really bad.
I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think āWell, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot moreā so I end up saying a low number. I was reading an article that said that ā10ā is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said ā6ā because I thought āWell, if you hit me in the stomach, it would be worse.ā
I searched and searched for the post this graphic was from, and the OP deactivated, but I kept the graphic, because my BFF does the same thing, uses her imagination to come up with the worst pain she can imagine and pegs herĀ ā10ā³ there, and so is like, well, Iām conscious, so this must be a 5, and then the doctors donāt take her seriously. (And she then does things like driving herself to the hospital while in the process of giving birth. Probably should have called an ambulance for that one!)
So I found this and sent it to her. Because this is what they want to know: how badly is this pain affecting you? Not on a scale ofĀ ānothingā toĀ āhow Iād imagine itād feel if bears were eating my still-living guts while I was on fireā.Ā
I hate reposting stuff, but Iāll never find that post again and OP is deactivated, so, hereās a repost. I can delete this later, i just wanted to get it to you and I canāt embed images in a chat or an ask.Ā
This is possibly why it took several weeks to diagnose my fractured spine.
Pain Scale transcription:
10 – I am in bed and I canāt move due to my pain. I need someone to take me to the emergency room because of my pain.
9 – My pain is all that I can think about. I can barely move or talk because of my pain.
8 – My pain is so severe that it is difficult to think of anything else. Talking and listening are difficult.
7 – I am in pain all the time. It keeps me from doing most activities.
6 – I think about my pain all of the time. I give up many activities because of my pain.
5 – I think about my pain most of the time. I cannot do some of the activities I need to do each day because of the pain.
4 – I am constantly aware of my pain but can continue most activities.
3 – My pain bothers me but I can ignore it most of the time.
2 – I have a low level of pain. I am aware of my pain only when I pay attention to it.
1 – My pain is hardly noticeable.
0 – I have no pain.
This scale was SUPER helpful in getting my diagnosis/proper attention from the ER doctors this week. Ā Even if you canāt remember the numbers, itās helpful for doctors if you tell themĀ āMy pain is/isnāt impairing my ability to move or thinkā